Thursday, July 23, 2026

Stage IV

Day before yesterday, I was feeling sad, so I sat down at my computer to write about it. Writing is how I work through things, whether they be emotions or ideas. Right away, I started to cry. And as I wrote, I realized that I have not grieved the losses. Cancer has stolen so much, completely upending my life. Instead of grieving, I went straight to adjusting, adapting, and coping (with plenty of prayer thrown in the mix). Words and tears poured out that day, the type of heavy weeping you do when someone you love dies.

 Here are the hard parts:             Life goes on while mine stands still.

                                                                                                The treatments never end unless I do.

                                                                                                Fatigue drains physical ability and brain power.

                                                                                                Side effects knock out what I want to do.

Stark? Yes. True? Yes.

Some days my positive attitude goes down the drain.

Today I am finally crying. I’ve lost so much to cancer.

It’s another day alone in my home.

I was lucky enough to be able to put away the clean dishes from the dishwasher without getting dizzy.

It’s too hot to chance going outside.

What was it like to be able to work?

Or pick up my grandsons from school?

Or take a walk?

I miss my life.

I don’t remember the last time I cried.

Somehow, I put off grieving without realizing it.

I embraced acceptance right away, knowing Jesus would see me through.

And he has. And he is.

But still, this life is hard.

Bear witness to my tears.

After my first round of cancer, I had eight years cancer-free. I rarely even thought about the possibility of recurrence, which must have been a God-given grace. When the cancer reappeared in July 2024, it was considered curable. And it was, though about half of my energy disappeared with the cure.  I knew that there was a high risk of another recurrence, but I didn’t waste time worrying about it. What I did not expect was that it would return so soon, in less than a year. This time it was not curable but treatable, which makes a huge difference.

When cancer is considered curable, you count your treatments, aiming for the time you will be done. That helps a lot. Someday, you know, you will ring the bell. But with palliative care, which can be just as difficult as curative care, there is no timeline. There is the blessing of longer life but with restrictions that are usually referred to as side effects. Some people breeze through treatment, but not I. My side effects (mostly fatigue) rule my life. “Pushing through” makes me sicker instead of stronger. So, I pay attention to my body and rest a lot.

Being a productive person becomes a thing of the past. The fatigue goes far beyond anything that is cured by rest, though if I don’t rest, the fatigue gets worse. Much of the time the fatigue is not just limited to my body; my brain is tired, too. Sometimes I cannot focus to read at all. If I have enough energy to write, I do that. And then go rest again. This morning, I went on a short errand to a local downtown market, something I’ve wanted to do for a week. I was gone (driving time included) for less than thirty minutes and then spent much of the day in my recliner. I’ve done several five-minute tasks around the house and took a nap. But the tears are gone.

 

                                                               

Friday, July 17, 2026

False Alarm

 July 14

My July 10th PET scan report said that two small spots lit up, their exact location unclear. Lower right lobe of lungs or top of liver. And now I wait until tomorrow’s oncology appointment to find out what that will mean for me.

I’m guessing lungs because of the coughing fits and beginning of breathlessness. But still the wait is hard.

Will Dr. Moussa order an additional scan? The radiologist report recommended either a watch and wait until my next PET scan or a CT or MRI with contrast. Will my treatment schedule change? Will my treatment itself change? Is this the beginning of harder times?

I’ve been wondering what’s up since my infusion three weeks ago. The usual one-week fatigue turned into three weeks, with July 3 and 4 being the worst days. I am hoping this will not be my new normal.

July 17

Turns out there was no need to panic because no solid mass was found. I will have a PET scan follow up and, in the meantime, continue my course of treatment.

As far as the coughing fits (my lungs sounded normal), Nurse Ashley suggested cutting back on the Mucinex I take daily. It had not occurred to me that it contributes to my postnasal drip. I cut back, and that has made a big difference already.

The unanswered question is why my fatigue lasted so much longer than usual. I will carefully monitor the fatigue from yesterday’s infusion and report back to Dr. Moussa at my next appointment on August 5.

Yesterday afternoon I had several hours of feeling super lousy. But today has been the usual fatigue. This morning, I did a few too many things (started a load of laundry and took trash out) that didn’t help. It’s been a quiet afternoon in my recliner.

This morning’s Psalm reading, chapter 111, brought encouragement. Verse 1a, “With all my heart will I praise the Lord,” reminded me to praise God especially when I don’t feel so great. And verse 4b followed up with this beautiful truth: “the Lord is gracious and compassionate.” He is.

 

 

 

Saturday, July 4, 2026

Fifty Years Ago

Fifty years ago today, during some extremely hot weather in Freiburg, Germany, a friend and I hiked up a small mountain (or was it a big hill?) and had a picnic in a cow pasture. At age 20, I could not even imagine being 70 or what I might be doing on the 250th anniversary of our nation’s founding.

I surely would not have imagined what yesterday and today have been like for me.

My most recent infusion was on June 25th. Normally, once a week has passed, I’m ready to reenter the world, meaning driving my car and getting out of the house for a while. I’ve come to depend on that. One week of staying home and resting gets balanced out with the two weeks of feeling better until my next infusion.

Assumptions are dangerous when you have cancer. They make reality harder to bear.

Today, like yesterday, I’ve been the type of tired that is not relieved by rest but nonetheless demands it. I get fatigued by relaxing in the recliner, so then I go lie down in bed for an hour or more. Sitting up to write at my computer means I’ll be back in bed again or at the least reclined in my recliner pretty soon here.

But I need to write right now to deal with this unexpected severe fatigue. Is this a fluke? I’ve not been outside and keep my house at 73 degrees. (The air conditioning bill is going to be painful, but feeling warm at all brings on nausea, so keeping cool is worth it. Especially since weeks two and three are marked by nausea anyway. Fortunately, I have two prescriptions that I can choose from, and do, at the first sign of queasiness.)

Could this be my fibromyalgia acting up? It’s hard to sort out what is fibromyalgia and what are side effects from cancer treatment.

And the big, scary question: is this how week two after treatment is going to be from now on?  Or are my white blood cell counts low? (something that has not been a problem this third time with cancer) If it is merely low counts, that can be solved with a shot the day after treatment. If this severe fatigue is a heightened side effect . . . well, I do not know.

So far, I’ve been fortunate that my side effects have been minimal in the larger scheme of things. Yes, I’m borrowing trouble by wondering if that is going to change. I’m feeling afraid, something I claimed in an earlier post that I rarely have experienced in this whole cancer saga.

The problem with severe fatigue is that it is isolating and boring. After a week of staying home, I am tired of staying home with no energy to do anything.

Okay, I’m done complaining for now. I’m going to remind myself that no matter how I feel, God is still present. And I’m going to post this now, then eat something and go rest again.

Thanks for listening.