Friday, November 21, 2025

an experience from October

 I’ve never been able to imagine heaven. But God gave me a glimpse.

We are told that there will be no more sorrow or pain, no more sin or strain, no more disability or weakness in heaven. However, I think of my friend Cathy joyously spinning along in her electric wheelchair instead of walking, dancing, leaping for joy. And I don’t even know how to start imagining myself without the last thirty years of fibromyalgia.

I was sitting at my computer, saving photos from my family’s October 4 photo shoot when it happened.

At once, I felt as if an invisible hand lifted me up a few inches from my office chair. I looked to the left and saw my profile (but not one of the pictures) infused with joyous energy. The energy surge left its mark for hours. Was this some strange side effect of chemo drugs and the anti-nausea medicine (an anti-anxiety med)?  I thought that for a time. But later as I pondered this unusual experience, I saw that it was a gift. A preview of myself in paradise.  There my body will no longer weigh me down. The Holy Spirit will be my source of joy and life, a vibrant energy unsustainable here on earth bound to my mortal body, but endless in the presence of God.

Thursday, November 13, 2025

Yesterday and Today: Part One

I come home from today’s chemotherapy in Bartlesville sleepy from the IV Benadryl and hyped up from the IV steroids, not a good combination! Yes, my labs from yesterday’s Tulsa labs and appointment with Dr. Moussa’s nurse were good enough to proceed; in fact, my liver enzymes were normal! Ashley did note that my lungs made the rubbing sound that accompanies pleural effusion, so she ordered an X-ray, which showed a small accumulation, this time on both the right and left lungs. There is not enough to warrant getting the fluid drained yet.

It is a relief to have the port for blood draws and IVs rather than using my left wrist or hand. Evidently, the veins farther up my arm are crooked and roll rather easily. As long as the word “crooked” only applies to my veins and not my character, I can handle that label!

The port itself is on my chest straight across from my right shoulder. Unlike the port I had almost ten years ago, this one really sticks out. I’m having a hard time getting used to it, but fortunately it is not as tender as it was last week.

 

In case you don’t know, I am a people watcher. Yesterday, as I waited my turn in the lab waiting area, two people caught my eye. The first was a young woman with a crew haircut by whom I sat, lucky to find a chair. (A crew haircut is a good preparation for losing your hair.) Joni started up a conversation with me, and we shared cancer stories. I’m guessing she is in her twenties. She was treated for non-Hodgkin’s lymphoma in 2023, and it has come back. She is nervous about traveling to Oklahoma City soon to have her stem cells harvested and to have aggressive chemotherapy in the hospital. (I don’t remember which comes first.) She was stoic about the significant chance for another recurrence as well as a high probability for breast cancer later. Our time to talk was short, and I regret not bringing up Jesus. My heart breaks for her, and I’ll be praying for her.

Soon after she left, I noticed an older husband and wife. A lab technician came out to personally escort her into the lab, taking her hand. I recognized the pleasant blank look on the wife’s face as dementia and prayed silently for her and for her husband as her caregiver.

Today, in the Bartlesville treatment room, I noted the elderly gentleman whom I’ve seen before. Today, I realized he is likely a nursing home resident. Eddie must be over six feet tall and skinny as a rail. He is endlessly polite and a favorite of the nurses, who joke around with him. He finished before I did, and a driver from Elder Care came to help him into a hospital wheelchair. I wondered about all Eddie must have experienced in his life as a black man.

Another person I recognized was a black man in the twenty to forty age range and. His hair is long enough to put into two tiny braids back behind his ears. (I hate feeling the need to mention skin color, but I feel I must in order to give you a clear picture.) Last week he accompanied an older white man, and this week he accompanied a middle-aged white man whom I supposed to be poor and homeless, based on his appearance. Why am I telling you this? Because the man with braids clearly has a servant’s heart. He not only assisted the person he accompanied but also helped other patients, even me, last time. When I requested a warm blanket from a nurse, and she couldn’t get it right away—and I had no problem waiting—he brought me one and carefully arranged it over my lap. Whether he is accompanying friends or is a hired caregiver, I saw his gentle, respectful approach to people and the camaraderie he has with the nursing staff.

And one more in the treatment room today, a very old white man who looked pale and feeble. He received bad news that because his creatine levels had increased, he could not have his treatment today. The nurse was so kind and patient explaining this as well as that his doctor wanted him to be admitted to St. John Medical Center in Tulsa today. Though he was surprised and flustered by this news and did not understand it, he had the presence of mind to make a bunch of phone calls to people he knew to get a ride and arrange for various other needs while he would be in hospital.

Do I sound like an eavesdropper? Let me explain that the Bartlesville treatment room is an open rectangular room with hospital recliners and IV stands placed all around the perimeter. Thus, everyone can hear part or most of everything that is said.

These observations reminded me again of how so many people are dealing with so many difficult health issues. Seeing them reminded me of the need to be gracious and respectful to every single person we meet. That is the call of Christ, to love God with all our heart and mind and strength, and to love our neighbor as ourselves.

 

Part Two

I feel compelled to share a dark, chaotic dream I had in the middle of last night. I do not remember exactly what was happening, just that there was no way to escape the evil all around. Surprisingly enough, the dream was not frightening. I woke up with the shadowy images in my mind and spent a long time pondering what I could only partly remember. After much thought, I came up with this: Jesus the Christ is the light in the darkness and the light that exposes the darkness: he exposes evil for the twisted thing it is. Sometimes we cannot perceive that light at all. Sometimes we may see a pinprick. Sometimes he surprises us with the light’s glory. That glory is reality, and that glory is eternal life. I am safe in that light whether I live or die (and, of course, we all die eventually!). Aligning our lives with the light of truth is (and should be) the walk of Christ followers. Living into that light brings unspeakable joy and peace.

Yesterday and today as I observed fellow cancer patients, I got to see pinpricks of light in the midst of suffering. Glory be to God!

Monday, November 10, 2025

Update

 By last Thursday my liver enzymes had gone down, so I had the scheduled infusion, the dose reduced by 25% and delivered via the port that was put in the Monday before. Everything went well.

I’ve been shaky, a little off balance, and fatigued since the weekend, but that is nothing new. Let’s just say I’m living a leisurely life!

Oh, and one more thing: the blood test for my tumor marker also decreased. I’d say that is good news all around.

Sunday, November 2, 2025

This Weekend


                Grief looms large after the wonderful visit from my brothers this weekend. We filled the time with so much conversation about anything and everything. What I cannot fully grasp is that this may be the last time I will ever see them.

                That they came the distance to see me means more than I can say. That our time together as well as our time with my family here was so natural and familiar fills my heart with joy. It was perfect.

                It turned out to be a blessing that I have not had treatments for the past few weeks because I had enough energy to spend the whole time with them. In the weeks to come, I will ponder how much or how little palliative care is worth it. I don’t know the answer yet. How I respond to reduced-dose infusions—my level of comfort and energy plus my liver’s response—will provide the answer.

                Life and family relationships are so very precious. I would like to be around another ten years or more to nurture and enjoy them. God is the only one who knows how long I’ll stay around. My heartfelt hope is to make the most of my time. This weekend was one shining example of how beautiful that can be.

                So, Bob and John, no matter what, I will be okay. Thank you for the gift of presence you gave me this weekend.